“Every day is a journey, and the journey itself is home.”
– Matsuo Basho
For those of you who have been following my blog for awhile, you’ve probably sensed that I’ve been grappling with something. Something like a whole lot of random puzzle pieces, and wondering why they won’t all fit together. Arranging and rearranging them and then darting down another wombat tunnel (these are rather long and extensive by the way) searching for another missing piece, hoping that this time, I’ll finally be able to see the entire picture. Or, at the very least, have all four corners and the edge pieces in place.
Fueling this quest has been a sense that something isn’t quite right, which might’ve been blown off as anxiety or misplaced perfectionism if the story had been a little different.
Of course, the general recommendation was “to go with the flow”. The only trouble being, that I was beyond the flow. Moreover, nobody ever presented me with a map or gave me any directions whatsoever to try to find the flow, let alone a lift. Indeed, since whenever, I’ve never gone with the flow or even known what it was. Hence, why I’ve called my blog “Beyond the Flow”.
Lately, this sense of not going with the flow re-positioned itself, and I felt more like I was living in between the lines where I perhaps don’t belong to either group but see something in between that other people miss. This perspective is also rather interesting when you look at it from a visual perspective, as you’re inhabiting that white space between two sentences. Not that I can actually read either sentence, as I’m up too close. It’s all a blur. I’m just there. Indeed, I could well be fast asleep, and quite at peace in what actually seems an uncomfortable, or even isolating position.
By the way, I didn’t say that I was alone. I’m not. Indeed, I’m actually starting to wonder just how many of us hover in between worlds not really knowing where we belong and yearning to find our home. Or, perhaps we/they have reached a point of acceptance, or even giving up, and have pitched a tent where they are and set up camp.
For many of us, there’s a complicating factor which heightens this sense of living in between the lines. Of not going with the flow. Even, grappling to know who we are within our own skin, before we can even attempt to work out how we can find our place in the outside world.
Personally, my struggle to know and understand myself raised up into something of a tsunami wave, after I was diagnosed with hydrocephalus or fluid on the brain when I was 26. Apparently, it had been there since birth, but randomly became symptomatic in my mid-20s. Suddenly, thanks to my diagnosis, I had an explanation for being quirky, uncoordinated, and not fitting in. Better still, I had a cure. A magic fix. I had brain surgery and was given a shunt, which not only reduced the pressure in my brain and improved my coordination, it also felt for a time like the lights had gone out. Indeed, I started to believe that the theatrical, extroverted independent woman I had always been, was largely the fabrication of this disease. That all this pressure in my head, had made me disinhibited. That at least some percentage of who I thought was me, was in actual fact the disease stepping into my shoes and even inside my very skin and taking over.
This, of course, left the door open for way too many questions, and they not only moved in, but also made themselves at home.
Indeed, it left many doors and pathways open as I grappled to find some rock solid sense of myself. That core at the very centre of my being. The bit that is left, when you remove and take off all the layers and external forces and just is.
“To know yourself as the Being underneath the thinker, the stillness underneath the mental noise, the love and joy underneath the pain, is freedom, salvation, enlightenment.”
Much of this exploration has either been unconscious, or going on in the background while I’m getting on with the realities of life. If you’ve lived with this , you’ll know what I mean when I say the front screen is running but there’s another screen running behind closed doors, behind the curtain, or even somewhere at the back of your eyeballs (the eyes being the window of your soul). I never intended to live and operate like this, and I must admit it’s been very frustrating. I’ve really struggled to know quite who I am, and then to confound it further, I developed a debilitating auto-immune disease, which side-swiped me like a massive monster truck. Of course, it didn’t stop to see if I’m okay, or to even help me get my bearings. It just kept going.
“Knowing yourself is the beginning of all wisdom.”
Anyway, as I said, I’ve been niggling with this in the background and moving very much by feel. I feel comfortable, belong and really thrive in some settings, but in others, I shrivel up and am almost screaming in my skin to escape. I feel awful. There doesn’t need to be an explanation. Indeed, there often isn’t one.
I am coming to wonder whether it’s been this struggle within myself, which has taken me so deeply inside my family history. Indeed, now that I’ve found the missing piece of the puzzle, it feels like this is what I’ve been searching for my entire life. It wasn’t a coincidence that I wanted to swing from the chandelier. Or, that I wanted the be an actress right through high school (in addition to being a journalist). There was this pull from somewhere deep within my DNA, which didn’t connect with Mum and Dad or anybody in the near vicinity. However, deep within the lines of historic newspaper text, there it was. My grandmother’s grandmother performed in an amateur Minstrel Show in Queanbeyan, near Canberra. While it wasn’t New York, the programme was printed in the newspaper, and she wasn’t only the pianist. She was also acting. Indeed, Lizzie Johnston was playing Louisa in a romantic farce: The Rival Lovers. Finally, I had permission and acknowledgement of who I’ve always been. A constant beyond the ups and downs of life and collisions with life-threatening illnesses. An extrovert who doesn’t need a stage to perform, and can even perform in words upon the page, just like my kids sing and dance across the stage. Indeed, I don’t need a drink to perform a on stage either. Rather, I need someone to tie me to my seat in the audience.
Of course, that is not to say we’re pre-determined by our genes. However, personally I found it very encouraging that someone else in my family has been down this road, and I’m not crazy. That it wasn’t the result of too much pressure on the brain. It’s simply me. Moreover, there are quite a few performers on both sides of my extended family tree.
Two roads diverged in a wood, and I—
I took the one less traveled by,
And that has made all the difference.
– Robert Frost.
However, I’m not sure that this discovery is going to change a hell of a lot. These days, I’m pretty content with what I’ll call “my lot”. I’ve been doing some performances on my violin, which isn’t quite the same as jumping out of a cake or swinging from a chandelier, but I now understand a little better why I wanted to perform, and wasn’t content to only play alone at home.
While this journey is incredibly personal, and having problems with your brain isn’t something to brag about, it was a story that needed to be shared. While it’s been a catharsis for myself, I wanted to reach out to people grappling with similar issues, and hold your hand. We are not alone.
Lastly, I wanted to share an animation of a favourite book of mine by Shel Silverstein: The Missing Piece . It might be simple, but it’s very profound.
If this post connects with you in any way, I would love to hear from you via the comments.