Category Archives: Chronic Illness

Heaven or Earth? Reflections from the Dark Side of the Moon.

Before I get started, I thought I’d play Alleluia sung by Ed Sheeran. Get you in the mood. The last week has been deep, dark and philosophical punctuated by blasts of Spring sunlight and tail wags from the dog.

Actually, the last couple of months have been “challenging” after the death of our Border Collie, Bilbo. We’ve had him since our daughter was crawling and he’s seen us through so very much.  Moreover, I’ve also had another brush with severe asthmatic coughs and chest infections, which get me every August.

Not unsurprisingly, the kids have been distressed and shaken up. They’ve had questions, and I’ve had to come up with the answers. This included a particularly curly question, which I decided to share. It’s big and it’s important:

Why should we stay alive when life is painful, when we could be in heaven where there’s no pain, no troubles?

I hadn’t quite thought of heaven as the ultimate “grass is greener” before. However, I suppose it is. Otherwise, why would it be called “HEAVEN”? Furthermore, why wouldn’t you, I, want to get there on an express trip? Why do we fight so hard to stay alive, when we could be living up there in the clouds? Even Cloud 9?

While I’ve had my dark moments, and even extended interminable stretches of raw anguish, I haven’t really thought of heaven as my greener pasture. At least, not in the here and now.

I’ve known too many people who’ve lost someone to suicide and am very conscious of the anguish suicide leaves in its wake… an anguish which has no end for the multitude of people who get touched by even one death.

So, I guess for me, particularly when I’m in a  level-headed state of mind, knowing that I’d be going to my ulimate happy place when everyone who means anything to me gets to suffer, doesn’t add up.

At the very least, it’s not a very nice thing to do.

However, that’s not something I would share with someone who wasn’t in a particularly level-headed state of mind. That’s something I might now start putting out there on one of my routine drives with my kids, now they’re my son’s 13 and my daughter isn’t far behind him.

As a parent, I’ve been wondering how to talk about sex, dating, periods, condoms, relationships, drugs, but amongst all of that, I’d forgotten all about the other fairly “normal” aspect of puberty…the E-word. EMOTIONS. Thinking back to being a teenager myself, I don’t believe there was any such thing as “an even keel”, being “level-headed”, “grounded” as as for balanced? HA!!

Moon bike

At least speaking for myself, my emotions were extreme, even turbo-charged. Well-intentioned comments like “there’s more fish in the sea” fell flat. My parents meant well, and believe me, I’m getting a better understanding of what it’s like to be a parent scraping the bottom of your psychological and philosophical barrell. When your child is combusting and you’re trying to pull the rabbit out of the hat. Trust me. That whole “bird and the bees stuff” is a veritable piece of cake compared to discussing emotional equilibrium.

Edward-Munch-The-Scream--black---white--15892

I can usually relate to The Scream by Edward Munch

How do any of us venture and and carpe diem seize the day and all that entails, without getting hurt? We can’t live our lives in bubble wrap and while you can have safe sex, there is no condom you can quickly wrap around your heart and it’s way too easy to get burned.

I’m not a psychologist. I’m no statistician either. I don’t know what it is which causes one person to take their life, while others persevere. What I do know, is that it’s not straight-forward. I also know that we can’t control someone else. We can’t stop someone else from taking their life. And yet, we sometimes can. Here, I’m speaking about the more collective we, but sometimes, it does come down to the individual. At times, we do become that person staring despair in the face, and it is up to us to pull the rabbit out of the hat. Or, I guess if I was some kind of professional at this, you’d be trying to get the person to find their own reasons for living. Or, at the very least, find a shift in gears.

A friend of my parents used to call the teenage years: “the swirling vortex of pubescence”. He was a very charasmatic gentleman and he’d roll this phrase out like a showman on stage. I always pictured these wild churning seas with the damsel in distress thrashing around in the waves. Never sinking, but not getting out either. I always found that phrase rather entertaining, although on reflection that note of humour, has it’s sting. Tony also put me onto a poet who knew those waves. Knew that intensity of emotion. That was Nan Whitcomb in her “Thoughts of Nanushka” and I’ve since found another kindred spirit in Australian  poet and cartoonist, Michael Leunig. Of course, there was also Keats and I’ve always questioned the merits of studying his Ode to Melancholy while studying for our HSC (final school exams = HUGE stress!!)

“That I might drink, and leave the world unseen,
And with thee fade away into the forest dim: 20
Fade far away, dissolve, and quite forget
What thou among the leaves hast never known,
The weariness, the fever, and the fret
Here, where men sit and hear each other groan;
Where palsy shakes a few, sad, last grey hairs, 25
Where youth grows pale, and spectre-thin, and dies;
Where but to think is to be full of sorrow
And leaden-eyed despairs;
Where beauty cannot keep her lustrous eyes,
Or new Love pine at them beyond to-morrow.”
John Keats, Ode to A Nightingale.
Ay, in the very temple of Delight 
Veil’d Melancholy has her sovran shrine, 
Though seen of none save him whose strenuous tongue 
Can burst Joy’s grape against his palate fine; 
His soul shalt taste the sadness of her might, 
And be among her cloudy trophies hung.
John Keats, Ode to Melancholy

I also remember listening to Queen’s  Bohemian Rhapsody. That song needs no introduction.

Hot chocolate & book

How will the story play out?

The trouble is, that when you’re caught up in the more turbulent passages of that “swirling vortex of pubesence”, you have no idea how the story is going to play out. Speaking of myself, I was so caught up in the immediate present, the current devastating disaster, that I lost all sense of perspective. That it morphed into some kind of hellish bubble, my world. I couldn’t see it was a storm in a tea cup. I couldn’t see, that perhaps being dumped by “the bastard” was the best thing for me. That it really was a case of there being millions of fish in the sea, and I only needed to find one. That I wasn’t trying to catch the one, last surviving fish in an empty sea.

I never saw my life as a novel back then. Indeed, it’s only been this past week, that I’ve appreciated the close parallels between real life and the structure a novel or play where the main character (protagonist) has their difficult person, adversary (antagonist) but after a few rounds, they come through. There’s usually a twist at the end, and more than likely, real life doesn’t turn out quite like you expected either, but you can still live happilly ever after. Well, at least until the next challenge fires up. Bearing this in mind, you have to make the most of those high notes. Carpe diem seize the day. Gobble them up with a cherry on top. Yet, you also have to be prepared for troubles. Expect storms and rainbows, as well as sunny, blue skies.

If I was going to talk to my 13 year old self. Or, in my case, it was more my 16 year old self which was really doing it tough, what would I say?

Firstly, what I would say, wouldn’t be something eloquent, well-written, or an outstanding piece of philosophical writing with all the answers. It would be more of a stuttered, muttered and garbled story about how if I’d pulled the pin then, I wouldn’t have gone on to experience the highs of my life. For me, like so many others, the school days weren’t the best days of my life. However, they were the necessary precursor to getting into university which I loved on so many levels. I went through many relationship ups and downs and had way too many friends run off with the guy that I liked. I also spent all the years from my birth until I was 27, living with undiagnosed hydrocephalus or fluid on my brain, which really did make me “different” in a myriad of ways I am still trying to get my head around. Yes, I wasn’t “unco” and more than likely, the intensity of my emotions weren’t just puberty either. The inside of my brain had been flooded, and I was under an entirely different kind of “pressure”.

So, if I’d pulled the pin at 16, I wouldn’t have known that I had this underlying condition which was greatly relieved through surgery. Yet, even if I hadn’t had that or if there had been no “magic fix” to my problems, I still believe that it’s worth persevering through the very darkest of challenges and fighting hard to find any glimmer of light which will lead us out of the tunnel. Why? Because there just might be something better ahead. That you could well resolve your current troubles through whatever means. a change of curcumstances, meeting someone else. Another door opens.

Indeed, I still remember the night I met my husband. A friend of mine was holding a New Year’s Eve Party in another friend’s apartment in Wollstonecraft, which had a view over the back end of the Sydney Harbour Bridge. I was supposed to going to that party with the boyfriend I’d had throughout the whole brain surgery saga and as you could imagine, things were rocky on so many levels I don’t know where to begin. Anyway, he dumped me just before the party and I really didn’t feel like going. However, it was only more of a soiree with only a few of us going and so I went. My husband opened the door. Now, I wouldn’t say it was love at first sight. However, we talked a lot that night and he gave me some really good advise  and I thought he was wise. Obviously, it was that old thing of crying on someone’s shoulder. I also remember standing out on the balcony together and I would’ve been photographing the fireworks, and he told me that he was also into photography. I clearly remember making a mental tick in my head. He also drove an Austen Healy Sprite, which he described as “English and tempremental”. I remembered that when we were driving through the Tenterfield Ranges in pouring rain to avoid the Grafton floods, and the exhaust pipe fell off on a pot hole. BTW, we’d been wearing raincoats in the car on that trip and had been soaked by the time we’d reached Newcastle. (We had been driving from Wahroonga in Sydney to visit his Mum and sisters family in the Byron Bay hinterland. It’s about a 10 hour drive.)

The ironic thing is that it can be these very worst moments, our greatest disasters, that we turn into our funniest stories. It’s often these moments which we’ll share around a barbeque laughing our heads of and entertaining the crowd, rather than the good times. I am now thinking that part of that is that we later find out these disasters weren’t so bad after all. Indeed, sometimes they proved to be a blessing in disguise. Or, they were a necessary step to get us to a better place, or to our ultimate destination.

So, now I would say that instead of pulling the pin, who have to keep breathing so you can keep living the book. Find out how you’re own story unfolds. Just one point here, too, and that is that you are not a passive player in your story. You are helping to write the script, as well as all the other characters. This is a team effort. You are empowered. However, you are empowered to do the best for yourself, AND the worst. Too often, it’s not the bully or our nemesis we need to watch out for, it’s our own selves. We shoot ourselves in the foot way more often AND we need to own that. Take responsibility. Not necessarily in a guilt way, but in an empowered driver’s seat way. JUst like if you were driving and made a wrong turn, you’d do a U turn and try again. You hopefully wouldn’t just sit in your car hoping it would magically take you where you want to go.

The ironic thing for me these days about people taking their lives, is that I am fighting with all I’ve got to save my own. This July marked 20 years since I had the brain surgery which saved and changed my life. This coming Tuesday, marks 10 years since I was diagnosed with a systemic auto-immune disease, dermatomymyositis which has left me with 60% lung capacity on a good day. I am getting through flu season again this year but again it’s been a battle. Three years ago, I had chemo to knock the disease on its head and fortunately that worked. I’ve had multiple times where I’ve been staring death in the face, and trust me. Not once was I thinking: “Heaven, bring it on!” No, despite being a Christian, all I was thinking about was my kids, my husband, my Mum, Dad, Brother and my friends. Giving them that kind of bad news, is devastating. The fact that I’ve survived, doesn’t negate that. We have lived through it and we continue to live with it.

So, this brings me to the very real need to talk to those we love about those times when the swirling vortex has taken hold, and give them concrete proof that they can get through it. That it’ s not only worth persevering through the hard times, that it’s possible to get there. Achievable. Moreover, they are not alone. Not only in the sense that we are with them now. Not just us as an individual either, but us as a community. The many layers of the onions…family, friends, teachers, pastors, the person you need down the street while walking your dog. But, we also need to make that time available. Leave enough space inbetween the words, the lines, the busyness that someone can sit along side us and be without being rushed, sped up, or brushed off.

I am not someone who has ever professed to have the answers, but I’ve always had the questions and I guess this is where they lead me now. But before I head off, another word just popped in my head. That is gratitude. While it’s not often possible to feel grateful for our let downs at the time, that can change through hindsight…especially with many of those heart breaks, which were the end of the world at the time. I wouldn’t be where I am now and while some of those guys were great people and simply not right for me (or me for them), I’ve been married to Geoff for 16 years now. We’ve survived some extremely hard times and miraculously stayed together. We hae two beauti ful children who can stretch us beyond the very brink at times, but who we love more than life itself. Sometimes, when things have been so hard, it’s hard to comprehend how the sun still rises in the morning and how life goes on. Yet, I’ve often found that very annoying and harsh reality, provides the momentum to keep me moving, which is ultimately a good thing.

I didn’t intend to write about this when I woke up this morning. I haven’t edited more than a couple of words and this is how my thoughts have landed on the page, or to be precise, my laptop screen. All of a sudden, in bright neon signs, I’ve realized that we as a society don’t talk about hard times. The cultural rhetoric is all about making it happen. Being whoever you want to be. It’s almost like you’re expected to find happiness in a fizzy drink…or a pill. Rather, what happens WHEN your journey through life hits the big snake just when you’re about to reach your goal and your sent straight back down to the beginning again? What happens when you’re a marketing executive and you’re diagnosed with hydrocephalus and you end up having brain surgery, getting a blocked shunt and requiring more brain surgery, the person you thought you were going to marry, dumps you because all of that’s too much and you’ve moved back home living with mum and Dad and going to rehab with the elderly at 28? BTW, that was also when I went to my 10 year school reunion. That was two weeks after the second brain surgery and I had no hair under one half of that bob. Indeed, there was a scar. I made it through that reunion and I was triumphant. Despite brain surgery being a much more sensitive embarrassing thing that the bad haircut.  I also had friends whose lives were picture perfect either. Some had divorced and one of my class mates had tragically died from cancer, which shook me to the core.

The fact that I’m still here, isn’t because I have some uber-amazing coping mechanism and I’m “Tonka tough”. I’ve had breakdowns. I’ve fallen face down in the mud and refused to get up. I’ve had days where I’ve stayed in bed and wrapped myself up in my doona and refused to get up. I’ve thought about how. I did jab myself with a pair of kindy scissors once when I was struggling to learn how to drive and fighting my brother for access to the car. That’s the closest I’ve come in a physically crossing the line sense, but these lines resonate: “hello darkness my old friend”.

Somehow, the collective “we” needs to have more of these conversations. The “where I was, how I found my way out and some of the joys of life we’ve experienced since” type. Talk about how life is ups AND downs. That we have to keep  walking, dancing, flying, dragging out feet, sleeping, talking, dreaming.They’re all part of it. Share and model that there is no magic pill, which will give you perfect, lasting happiness. However, there could well be multiple pills of darkness, which we need to approach with caution. Walk away from jealousy, envy, wanting to be someone we’re not, putting our value on stuff instead of relationships, replacing people with work. The list goes on.

Now, I’m turning it over to you. What has your experience been? I would like to invite you to share as much as you like in the comments below. What would you say to your teenage self about the dark times you’ve experienced? I could even see these becoming a series of posts. It would be truly beneficial to get a swag of letters together on this very important subject.

Love & best wishes,

Rowena

PS I just had to drop my daughter off at meditation of all things (our dance school is running a session for kids followed by a session for parents so I’ll be heading off next). Funny how walking and driving gets you thinking. Pops something so obvious into your head, which you’d missed entirely while tapping away into the screen.

My other advice to my teenage self, is not to put all my eggs in one basket, and to remain diverse. I had very good friends out of school and I’ve encouraged this with my own kids since dot. However, as someone with a fairly obsessive, driven personality, I’d like to share that focusing all your energies on one thing, isn’t a good idea. If something happens to that one thing, whatever it is, then you’re devastated. You’re left with nothing. There is no “Plan B”. You have no identity left. Naturally, I was devastated when I couldn’t work after the brain surgery. I had grief counselling where I was told “We’re human beings, not human doings”. It’s taken me a long time to get that. In the aftermath of the brain surgery, I turned to photography and although it wasn’t making me any money, I found it was a great topic of conversation. Far more interesting than work. These days, writing  is my main thing followed by photography. What you might not know, is that I started learning the violin four years ago, and last year I started dance classes and have made my way through short adult courses in ballet, contemporary, lyrical and tap. I’m not even keeping up in the dance classes, but dance is now part of my psyche. Who I am. It’s added another string to my bow, and exercised more than a few neurofibres as well. It’s very important not to get stuck in what I’ll call “bubble worlds”…becoming “a dancer”, “a lawyer”, “a mother”, a “father”. Rather, ideally, we’d be more of a spangled web or texture, colour, sound, taste and smell stretching somewhere over the rainbow and back again. We must wear many hats, to be fulfilled, and really just to survive.

The End.

That's All Folks

Dog Training 101: Don’t Cross Over The Rainbow Bridge.

“When the student is ready the teacher appears.”

– Buddha.

In hindsight, there’s one thing I really should’ve taught my dogs. While “sit”, “stay” and doing your business outside are important, perhaps this one command could really save their lives:

“Don’t Cross Over the Rainbow Bridge. Never. Not ever. Got it?!!! Stay here. Good dog!”

While I know that it might be a little late to start teaching Bilbo new tricks in his old age, given his current health crisis, I’m doing some fast talking and have even resorted to flash cards.

happy rainbow

Don’t Cross Over the Rainbow Bridge.

I’m hoping it works. Bilbo is an incredibly obedient dog. Our side gate or front door have been left open in the past. However, did Bilbo take off? Escape? Surprisingly not, not even when his untrustworthy canine companion, Lady, was long gone. That’s right. He was still there with his paws out in front staying put and being a good dog.

So, Bilbo would be a prime candidate for testing this theory.

What do you think? Am I onto something here? Do you think Bilbo could resist the alluring appeal of the Rainbow Bridge? Perhaps, would you like to join me and give it a go with your dog as well? 

Humph. It was much easier to believe I was in there with a chance, when I was just mulling it over on my own. However, you did have to remind me of a few unfortunate, biological realities. That, in what seems like complete madness, dogs and humans live side-by-side and yet the hands of their clock spin round seven times faster than our own. Poignantly, I just have to look at our 11 year old daughter and our Bilbo, our 11 year old dog. While Miss is about 6 months older than Bilbo and was crawling when he arrived as a pup, she is still a child and he’s become elderly…an old man.  That contrast really puts things in perspective.

Bilbo + Amelia

Bilbo and Miss almost 11 years ago.

Moreover, there’s another spanner in the works. Despite his strong willpower, if there’s a pot of fresh mince at the end of that rainbow, Bilbo would be over that bridge in a flash. Even with his reduced appetite, he can still polish off a pack of fresh mince and he could never resist that.

“I have sometimes thought of the final cause of dogs having such short lives and I am quite satisfied it is in compassion to the human race; for if we suffer so much in losing a dog after an acquaintance of ten or twelve years, what would it be if they were to live double that time?”

– Sir Walter Scott

So, it appears I’m back to the drawing board. Or, as it turns out, Bilbo is back to the vet tomorrow for a follow-up appointment and a scan of his spleen. AND…on the off chance he can’t pull a magic pill out of his hat, we prayed for Bilbo at Church tonight. I know there are more important matters a foot in our world at the moment, but I make no apologies for loving our Bilbo to the moon and back. He has loved us absolutely and without qualification. He has been there for us in such a ubiquitous way often sleeping in between the lines of everything that’s gone on around here in the last 11 years, yet possessing an empathy and understanding which defies logic. He’s also brought us so much joy…even if it’s just running our fingers through his coat or patting his ears while he sleeps.

“Dogs come into our lives to teach us about love, they depart to teach us about loss. A new dog never replaces an old dog, it merely expands the heart. If you have loved many dogs your heart is very big.”

– Erica Jong

Perhaps, you would like to share some of your dog stories or introduce the special dog(s) in your life.

xx Rowena

In case you haven’t heard of the rainbow bridge, here’s the poem:

The Rainbow Bridge

“Just this side of heaven is a place called Rainbow Bridge.

When an animal dies that has been especially close to someone here, that pet goes to Rainbow Bridge. There are meadows and hills for all of our special friends so they can run and play together. There is plenty of food, water and sunshine, and our friends are warm and comfortable.

All the animals who had been ill and old are restored to health and vigor. Those who were hurt or maimed are made whole and strong again, just as we remember them in our dreams of days and times gone by. The animals are happy and content, except for one small thing; they each miss someone very special to them, who had to be left behind.

They all run and play together, but the day comes when one suddenly stops and looks into the distance. His bright eyes are intent. His eager body quivers. Suddenly he begins to run from the group, flying over the green grass, his legs carrying him faster and faster.

You have been spotted, and when you and your special friend finally meet, you cling together in joyous reunion, never to be parted again. The happy kisses rain upon your face; your hands again caress the beloved head, and you look once more into the trusting eyes of your pet, so long gone from your life but never absent from your heart.

Then you cross Rainbow Bridge together….”

Author unknown…

Sickies…Dogs Don’t Lie.

As a parent, I’m always wary when the kids bung on one of their dying swan “can I stay home from school” routines. These performances can be worthy of an Academy Award. Yet, all too often when I’ve given them the benefit of the doubt, they resurrect like Lazarus and “party like it’s 1999”.

Bilbo with ball

Bilbo in peak performance appropriating another dog’s ball.

On the other hand, our dog’s never chucked a sickie in his life. He’s either chasing his ball with mad obsessive focus and eating like a hollow-legged teen. Or, he’s seriously ill. Moreover, when it comes to jumping in the car and going to the beach, he at the door in a flash. Never tells me to “wait”. Indeed, he’d be out the door already if he could open it himself.

However, Bilbo is no longer a pup. He’s now 77 in dog years, and he’d be forgiven for requesting a Dawson Chair, a Zimmer frame and signing up for the pension. However, being a Border Collie to the core, he tells me there’s life in the old dog yet.

Unfortunately, Bilbo is gravely ill. Last week, he started getting sluggish, and my radar kicked in. We noticed he coughed up a blood cyst, but as he was still eating, we didn’t rush him off to the vet. However, last night he went off his food and when that continued this morning, we knew it was time.  By this point, we were obviously expecting one of those conversations you don’t want to have with the vet. Not only in terms of what might be wrong with him, and there might be nothing they can do. There’s also that other conversation. That is, that there is treatment, but what is it going to cost? It’s hard to put a measurement on love that knows no bounds. Yet, the bank balance doesn’t understand that, and shows no mercy. It’s a callous brute without compassion.

However, all those thoughts could wait. We still had a few hours before we could get into the vet.

Since the dogs were already in the car, I decided to take them to the beach. Not the best move, in hindsight as the vet has ordered him to rest. However, I’m not a vet. I’m his Mum and knowing how much he loves the beach and what it’s means to us, I wanted him to be in his favourite place…his heaven on earth.

IMG_0998.JPG

However, if I needed confirmation that Bilbo wasn’t well, this was it. He laboured down the beach so slowly, that he was his own ghost. I threw his ball, and he didn’t blink. He just let it roll into the water. I tried a few more times with the same result, retrieving the ball myself. As much as I’ve thought his obsession with the tennis ball was extreme, seriously annoying and beyond the realms of addiction, this was worse. It felt like an echoing emptyness, if that makes any sense.

Yet, like a noble warrior, he ultimately did have a few laboured efforts.

Bilbo and Maya

You have to feel for the old dog unable to chase his ball, when some young whippersnapper races off with it.

Meanwhile, his young mates chased the ball like maniacs, legs whirling furiously through the sand.

By this point, you’d expect that some kind of emotion would set in, but I was blank. Couldn’t feel anything. It’s a day we’ve known is coming, and I don’t know how to react. I don’t feel I can cry anymore. That there aren’t any tears. That too much has happened and I’ve become a rock. A rock with some kind of senses, but nothing like who I was.

Or, perhaps, I’ve simply grown up. Become resiliant.

This would be a good thing because this time we lose a dog, I have to be the strong one. I have to be the rock supporting the kids. Mum can’t go to pieces. Can’t be the mess. I need to put on the big high heels and answer their questions, hug and comfort them and wipe away their tears, especially as they don’t even remember life without Bilbo. Miss was about 10 months old and crawling when Bilbo arrived and Mr was 3 years old. I still remember how Mr missed our previous dog (a huge Old English Sheepdog called Rufus) and didn’t like the new puppy because he wanted a big dog. Mr had been able to sit on Rufus and use him as a horse. He was a very big dog indeed.

Newton Family & bilbo

A family photo with Bilbo as a pup Mother’s Day, 2007.

So, Bilbo has been part of our family during a very special ten years of our lives.

Yet, it’s not time to get all misty eyed yet. At this point, we’re still at the beach. It’s 18°C and a gloriously sunny Winter’s day and the beach is magic.

Mid-morning, we return to the vet. He quickly points out that Bilbo’s gums and tongue are an exceptionally pale shade of pink and I’m quite shocked. He took some blood and we were sent out to wait. My husband ducked off to pick our daughter up from dancing. I wasn’t sure she should be there, but figured that the vet’s better versed at this than us. That if there is bad news, the vet no doubt knows what to say.

Bilbo + Amelia

11 years is a long time in human years too!

The news from the vet wasn’t good, but it wasn’t all bad. At this point, it seems that Bilbo could have an unpronouncable auto-immune disease. I can’t remember what the vet called it, and meant to write it down. His red blood cell count is down to 2.86 (should be 5.65-8.87) and his haemoglobin is 5.3 when it should be 13.1 – 20.5). He has just enough platelets to hope the treatment could work. His white cell count is high and he seems to be fighting back. He was given an injection of prednisone and is on tablets. I take him back on Monday morning for a CT of his spleen and a followup.

Meanwhile, I started my own, additional treatment. We bought him some fresh mince to see if that might stimulate his appetite and we had a rather hungry dog. He’s eaten 500g of mince tonight, minus a few donations to Lady, our other dog. It’s not going to cure him, but it might give him a fighting chance. Get him over the hump. It’s also much cheaper than a blood transfusion!!

Of course, I’m hopeful that he’s going to be okay. That there isn’t going to be something else going on and he’ll respond to treatment. He’s been in good health, so surely that must help… That “he’ll be right, mate.”

….

Well, it’s now Sunday afternoon. Bilbo’s still with us and lying on my lap quite happy to be a lap top dog. He’s eating the mince, but not so keen on his kibble. He’s perked up a fair bit. Yet, his beathing is very rapid, and I guess that’s the big concern and we still need to take that CT of his spleen.

So, I am feeling optimistic. No doubt, it’s the sort of optimism based on wishful thinking. An optimism which could seriously backfire and hurt like hell.

Yet, like the kids who don’t know life without Bilbo, I can’t imagine it either and am still hopeful that the vet might find that magic pill which will give him eternal life.

Meanwhile, Bilbo’s been instructed to “Stay. Don’t go near the Rainbow Bridge. Why don’t you watch a bit of TV….”

Yet, although he’s always been an incredibly obedient and faithful dog, there will  come a time when that last journey will come.

All the same, can I put in a request?

Not yet…

Thank you in advance for your concern. It is much appreciated!!

xx Rowena

 

 

Dipping My Toe in Yoga.

After all my struggles and contortions trying to put up the clothes horse yesterday, I wondered whether trying yoga was really such a good idea. Indeed, I couldn’t help wondering whether I’d end up in Emergency, tied up in myself like a knotted pretzel.

Take it from me, I’m NOT catastrophizing. I have strings of medical reports to prove it.

Yet, there’s this annoying inner voice determined to overcome all of that: “Rowena, get a grip! Disaster is NOT waiting for you around every corner. You can do it. You are capable. You have overcome numerous hurdles before with Olympic strength and endurance. You can do anything you set your mind to. This may be more than good for you. You might actually enjoy it.”

This voice and I aren’t always on the best of terms, and more than once, we’ve exchanged stern words.

A) Don’t you know I’m too stressed to relax?

B) Can’t you see I’m disabled? How can I do yoga when I can barely walk down a footpath without tripping over?

C) I’m sure there are a whole heap of reasons why I shouldn’t do yoga. I just can’t quite remember them now.

Well, the benefit of this particular yoga class, was that it’s being run by an occupational therapist. Moreover, it was recommended by my physio and a few of her other clients were going, That meant I’d be in safe hands, and I’d also be meeting people in a similar boat. That could also be really fantastic… a whole new social, exercise and potentially coffee group.

So, despite the rain, off I went.

And…I loved it…especially the last 15 minutes when we lay on our mats with a lavender eye mask on and a blanket over me, doing my deep breathing. I felt such a strong sense of well-being. It washed over me like a warm wave of kindness and I’d received a much needed inner hug.

Meanwhile, even my toes got stretched and that’s a good thing.

Have you launched out and tried something new lately? Or, is there something you’ve been putting off? Why not have a go?!!

Hope you all have a fabulous weekend.

xx Rowena

Weekend Coffee Share- Happy Easter Edition.

Welcome to Another Weekend Coffee Share!

Before I even offer you a cup of tea or coffee, let me wish you and yours a Happy and Blessed Easter. In so doing, I’d like to offer you more than Easter eggs, Hot Cross Buns and give you something meaningful instead, which would be so much more appropriate. So, I’ll offer you a hug and a smile and I just remembered that if you’ve just walked through our front door our Border Collie, Bilbo, and Border x Cavalier, Lady will be there. Bilbo might bark and he takes awhile to warm up to people, even people he knows, unless it’s my Mum who he seems to know is Grandma. Besides, just like Grandparents bring treats for the kids, she bring ham scraps for the dogs. Their love is easily bought.

bilbo & Lady friends

I know you think the dog protests too much. Somehow, friendship seems to grow on you when you’ve been thrown in the same backyard. You can somehow get used to having another dog around. Indeed, after all this time, I might even like the Lady.

We’ve decided to stay home and spend Easter Sunday with just the four of us. Well, that is after we’ve been to Church and Geoff and the kids will be going to hear Martin Smith from Delirious at Church tomorrow night. I don’t think I’ll be going as my lungs are quite sensitive and reacting to the slightest irritation at the moment. I’m slugging ventolin, preventer and phenergan and still coughing. Off for a lung scan, but I don’t think my lungs are any worse.

Anyway, as many of you will know, I’ve been embroiled in the Blogging A-Z April Challenge. My theme this year has been Traveling Alphabetically Around Tasmania. Considering my theme last year was “Writing Letters to Dead Poets”, I’d thought this year’s theme was going to be relatively easy. However, I didn’t just want to produce some kind of bullet point, shopping list tour of the place. I wanted something personal, intimate and providing an inside-out view of the place mixing in a bit of history in with our recent trip to Tasmania and our photos.

Perhaps, I am the problem and it was inevitable my A-Z would get out of control again and break out of its box. I do have a tendency to bite off way more than I can chew. This week trouble hit when I started writing about the Irish Nationalists who were exiled to Tasmania. One of these, John Mitchel, wrote Jail Journal which covered the time from his sentencing, escape and arrival in New York. As it turned out, Geoff’s Great Great Grandfather, Daniel Burke and his brother, helped John Mitchel escape. So, there was quite a personal aspect to the story and it took quite a bit of research to get the family facts straight. By this point, I started wondering whether to continue with the A to Z and had a few days off. I don’t know what it was. However, I felt much better this morning and caught up.

The kids are currently on school holidays for 2.5 weeks and have had a few days away with my parents to give us a break. We certainly needed it and am so thankful. I feel like I’m always heading in so many different directions and yesterday I decided to go nowhere. I slept in until the afternoon and parked in my writing chair researching and didn’t budge. Indeed, my phone didn’t even record one step for yesterday. There was no data available.

It’s okay to have a PJ day no and then when it’s perfectly acceptable to wrap yourself up in your quilt and retreat. Stop fighting whatever it is you’re fighting for one day. Unless you’re really unlucky, it won’t be the end of your world. Indeed, I had a lot more energy to get on with things today.

We’ve decided to defer Easter lunch with my parents and brother until Monday, which is my brother’s birthday.

I’m also trying to work out how we’re going to get to the Easter Show this year. We’ve been given free tickets, but there’s only a few days left and things on. Hoping to get there on Tuesday.

Anyway, that’s enough about me. What about you? Do you celebrate Easter? Or, you have different traditions and beliefs?

Well, I hope you’re going well and I look forward to catching up.

Best wishes,

Rowena

 

The Drowning – Friday Fictioneers.

Watching myself through an oblique lens, I’d blown to the four winds. Defragged like a faulty hard disk. Mid-40s, degree, career …now stealing food off strangers’ plates and sleeping rough.    

“No, Julie! Don’t do it!”

Ravenous, she’d snatched the pizza straight off the table, and was scoffing it on the beach like a Bangkok stray… twisted, distorted, wild.

“Julie! Julie!” I slapped. “Wake up”

“Nobody gets me. Never has.”

“What about me?”  I beseeched, but my words fell flat.

Praying for eternal nothingness, destined for oblivion, she slipped into the surf. Floundering. Gasping…

I ran.

Safe on the beach, slowly our breathing merged…again.

…..

This week’s prompt brought many things to mind for me. The first thing which came to me, was backpacking through Europe and being so tight with money and rationing our food and then watching others leaving food behind and feeling like we could almost lick their plates. I still remember that ravenous hunger!

From there, my thoughts drifted towards being homeless and being that hungry, you could snatch that pizza out of a restaurant in what felt like an act of utter desperation. Who would do that? How bad would it have to get to take you there?

I wonder…

I don’t know whether you’ve ever wrestled with yourself like this before where you’re split in two. Perhaps, not in such an extreme situation, but a time where you’ve been through hard times and you end up talking to yourself. Or, you’ve experienced God comfort you. Or both.

Becoming homeless and being swept along that dreadful downward spiral, is only be a paycheck or two away for most of us. I’ve never been homeless, but I have fallen on hard times and have often found this voice within myself guiding me along. Giving me encouragement and strength I didn’t know I had.

Given the very dark nature of my piece this week, I just wanted to explain it a little further. After all, when you play with words arranging them into very dark and foreboding pictures, I felt the need to debrief in a sense. Let the reader know that all is well.

Well, almost!

xx Rowena

This has been another contribution for Friday Fictioneers hosted by Rochelle Wisoff. This week’s photo prompt kindly comes from © Dale Rogerson.

I wish I Had Dance Feet…

People often say to me, ‘I don’t know anything about dance.’ I say, ‘Stop. You got up this morning, and you’re walking. You are an expert.’

Twyla Tharp

As you may recall, I’ve been attending a weekly adult dance class for roughly the last year. This has been a huge step for me, because I live with a severe muscle-wasting auto-immune disease as well as hydrocephalus and let’s just say mobility and coordination are not my strengths.

However, as I’ve mentioned, my daughter dances quite seriously and after watching countless open days, concerts and at times having serious difficulties getting her to class, I started getting sick of being stuck in the driver’s seat. I wanted to dance myself.

My motto – sans limites.

Isadora Duncan

Dance is the hidden language of the soul of the body.

Martha Graham

At first, I started dancing in my head and was amazed by my grace, poise and ability to jeter across the room.

Well, to be honest, it wasn’t exactly me. Taking a leaf out of the bower bird’s book, I sub-consciously “borrowed” or perhaps you could even say, that I moved into Miss Larissa’s feet and became a legend inside my own head.

That’s when I first started feeling like a dancer, even though I was unable to dance and to be perfectly honest, often struggled to walk, especially on public footpaths, which are forever trying to trip me up. In what felt like a very bold leap at the time, I gingerly approached my daughter’s teacher and confessed. Naturally, this felt rather “weird” and I wondered if I’d finally tipped the scales of madness to the point of no return. Dancing was light years away from “me”…a writer, photographer and someone living with a chronic illness.

writing

So, it was from this very tentative and reticent corner of the room, that I arrived at my first adult ballet class fully expecting to spend most of the night sitting in a chair. From where I sat, this wasn’t so much a position of defeat. Rather, even being in the room as a class member was an achievement and it felt incredible just to be a part of the inner sanctum. As I didn’t know what to expect of myself,  I simply hoped to have beautiful, ballet hands at the end of the six week course.

While I clearly didn’t have much in the way of personal expectations, even turning up was brave and courageous. That being there in itself, represented a huge gear shift I could be proud of. After all, wasn’t most of the world parked in front of their TV, computer or mobile phone screens, while I was stepping out and being challenged by something completely out of my realm.

Sometimes, you deserve  a bit of praise and enthusiastic applause simply for getting out of bed. and if you make it out the front door that’s a bonus.

That’s where I was coming from. So, my expectations of being able to dance weren’t great.

So, you could just imagine my delight when I was somewhat keeping up with the class. That I didn’t spend the entire class in a chair and wasn’t as uncoordinated as I’d thought. After all, there’s nothing like a bit of brain surgery and tinkering away in your head to get the cogs moving.

Those early nights of adult ballet classes, almost feel like a dream a year down the track. I’ve since done two short contemporary/lyrical classes under Miss Karina Russell. She’s not only been teaching us about dance and choreography, she’s taken us on a journey through various choreographic styles and given me something to Google when I get home. I was as proud as punch of my research and the growing list of dance quotes I’d compiled, until she asked me if I’d actually watch them dance. Of course, not.  Yes, I was still very much the writer and researcher than a dancer…a woman of action. Yet, it was still early days.

Last night, we had our last contemporary class for the time being and next term, we’re switching to tap. So, last night was special and a bit like performing at the end of year concert. I wanted to put my best feet forward and perfect our routine. Or, at least, be facing the right direction at the right time.

However, after going on our long walk on Sunday and obviously overdoing it round the house yesterday, my systems were overstretched and I couldn’t get it together. For the very first time, I was struggling with left and right as we attempted pirouettes, and was facing all the wrong directions doing our warm ups and stretches. This was so bad and as much as I laughed it off, there was also that frustrated, annoyed dancer stuck inside me trying so hard to get out, yet battling the mortal realm.

Why couldn’t I have dance feet? A dance brain? I was feeling like someone had switched all the wires over and when I meant to go left, I went right. Or, I just ended up in a mental knot…a spin which was anything but a shanay turn.

Aside from the fatigue, there was another sound explanation for my brain-body confusion.

While watching Miss Karina so intently, I was absorbing her moves as my own and couldn’t understand why my body wouldn’t cooperate. Why didn’t my foot point like that. Why couldn’t I stand on one leg while rotating my hands and foot without wobbling and falling over like a house of cards? It was like I was having some kind of massive computational error…Miss Karina in, Rowena out. There was a definite bug in the program!

However, I’m not that hard on myself that I didn’t know I was tired. That I wasn’t dancing at my best. Or, that Miss Karina not only has natural talent, she’s also worked exceptionally hard for a very long time. As  she will testify, there’s no fairy Godmother and no magic wand either.

“Destiny, quite often, is a determined parent. Mozart was hardly some naive prodigy who sat down at the keyboard and, with God whispering in his ears, let music flow from his fingertips. It’s a nice image for selling tickets to movies, but whether or not God has kissed your brow, you still have to work. Without learning and preparation, you won’t know how to harness the power of that kiss.”
― Twyla Tharp, The Creative Habit: Learn It and Use It for Life

Yet, I am simply grateful to be a part of it, find acceptance even on an off night, and to be able to see Miss Karina dance up close and appreciate all the detail that goes into being a brilliant dancer. Not only for my own benefit, but also for my daughter. Since I’ve been doing these adult dance classes, we’ve been able to share a common language and last weekend when I saw her draw a semi-circle in the sand with a pointed foot, I knew exactly what she was doing.

“Think of the magic of that foot, comparatively small, upon which your whole weight rests. It’s a miracle, and the dance is a celebration of that miracle.”

Martha Graham

 

dance feet

Secret dance business. We only reveal our feet.

“My feet are dogs”.

Rudolf Nureyev

So, last night at the end of our class, I lined everyone up for a few photos. I’ve really been hanging out to photograph all our feet. While this might seem strange, for me our diverse range of footwear reflects who we are. There were socks, joggers, toe shoes, jazz shoes… as well as me wearing my pink satin ballet slippers with the satin ribbons to a contemporary class. We are a motley crew who take our dance seriously and work hard. Yet, there’s also this constant laughter, good humour, fun personalities as well as the joy of belonging and being part of the dance, which is an incredible feeling all by itself.

I don’t know why more creatives don’t cross-train and do some painting, dance, try some artistic photography with an SLR instead of their “camera phone”. While cross-training has become standard for athletes, I get that sense that creatives are still very much absorbed by their thing and it’s a rare soul who ventures beyond the usual streams which go together. In the performing arts, you hear about being the “triple threat”. That means you can dance, sing and act. Yet, I’m not aware of an equivalent term for someone who can write, do photography and say graphic design.

There’s so much to be gained from stepping beyond our comfort zones and what we’re naturally good at and enjoy. Instead of every writer writing about what it means to be a writer, you can write about the exhilaration of dance from an inside perspective instead. You’re not just a voyeur watching life pass by through the keyhole. You’re living it too.

That is, even if you’ve only got duck feet.

Do you dance?

xx Rowena