Tag Archives: 2014

2014 in review-The World-Wide Impact of Blogging.

The WordPress.com stats helper monkeys prepared a 2014 annual report for my blog and I was blown away by some of the results.

The report showed that I’ve had visitors from 62 countries last year, about one third of all the countries in the world. When you consider that I was immobile for much of 2014, I was gobsmacked and completely stoked about this global spread of my writing. Before I started my blog, I used to share my poetry with my husband and a friend in her shop down the street. I love this global expansion , even if it’s still on a small scale. Shows what a little person can achieve with persistence, hard work and not letting the black dog of low stats defeat them. It also validates blogging as a credible and world changing vehicle

Let’s keep spreading our words and ideas around and around the world in 2015

xx Rowena

Here’s an excerpt:

A New York City subway train holds 1,200 people. This blog was viewed about 4,900 times in 2014. If it were a NYC subway train, it would take about 4 trips to carry that many people.

Click here to see the complete report.

Happy New Year

Drawing smiley faces in sifted flour. Teaching the kids to make pizza inbetween Mummy’s chemo sessions Jan 2014.

I was still going through our photos putting a slide show together for 2014, when I revisited this smiley face our daughter drew in the freshly sifted flour.

Naturally, I love it.

Not only because it is such a wonderful expression of childhood delight in the incredibly simple but when I revisited that photo today, I remembered the context. Miss drew that smiley face in the middle of my chemo treatments last year.

You see, making pizza was the first of my “structured” efforts to teach the kids how to cook a meal. As you could appreciate, this wasn’t some sort of preparation for when they move out in 10 or 50 years time and making them self-sufficient. Rather, it was about there immediate here and now. They needed to learn how to feed our family.

Sure, you go into chemo with a positive attitude but seriously as a parent, you do need to consider the what ifs and not just leave your family in the lurch. This is what I and others call: “optimistic realism”. Like many of our cooking efforts, there was a lot of fun, humour and error in our efforts and we were cooking with somewhat “primitive” implements house minding a rather poorly equipped beach house.

Yet, both the pizza and the apple pie both turned out well in the end.

I now find this image very reassuring that our kids had fun and drew smiley faces even in the midst of what really were terrifying times for us all. It gives me a great sense of relief, even though I know we’ve all been through the ringer as well.

You can read our original cooking pizza and apple pie post here: https://beyondtheflow.wordpress.com/2014/01/17/day-3-yeast-pizza-from-scratch-and-quirky-apple-pie/

I would love to hear any of your stories of experiencing joy during a trial!

Best wishes for the New Year!

xx Rowena

Seeds for the New Year

January 2, 2014

Seeds in anybody’s language spell hope, new beginnings…the start of a dream but for me there was an added resonance.

Yesterday, I received the ultimate New Year’s gift.

It wasn’t expensive or luxurious.

In fact, it was deceptively simple and it cost its giver nothing.

Not even a cent.

“How is this so?” I hear you ask in a very Professor Julius Sumner Miller tone of voice. Perhaps, you haven’t heard of him but he used to host a science show called “How is it so?” and he also did an ad for Cadbury Dairy Milk Chocolate where he managed to get a boiled egg inside a milk bottle. It was pretty impressive stuff.

Julius Sumner Miller

This was in the days before a more recent Australian politician, Pauline Hanson, made the phrase: “Please explain” legendary.

Well, I am overflowing with explanations.

The kids and I were visiting some friends. All the kids were playing. I’d brought my friends some of my White Chocolate Rocky Road and she’d given me a slice of her Wild Strawberry Cheesecake, which was incredibly lush and made completely without additives and nasty chemicals. Wow! It was exceptionally creamy and I must admit I was feeling rather spoilt. This is the sort of thing you usually have to go to a café or gourmet bakery to find….very, very nice. My friend also made me a cup of tea and there is always something particularly healing and soothing about someone else making you a cup of tea, especially when you are a busy Mum and always seemingly looking after everybody else. She was an angel.

While the kids were bouncing round in the pool, I couldn’t help notice all their veggies. They grow their own tomatoes, beans, beetroot and more in garden beds raised above the ground. All these veggies, which could almost amount to a small market garden, are growing slightly more than a stone’s throw away from the beach on a standard suburban block. Quite a miracle really except you can see this garden is very well-maintained and cared for. Loved.
I was incredibly impressed and inspired.

Not that I looked at their set-up thinking: “if they could do it, I could do it”. Not on your life!!! However,  I did consider that just maybe we could manage one tub…a veggie patch on a smaller scale and actually grow something! The rest of our garden might be derelict but perhaps we could manage to look after this small patch of soil and develop our own backyard “oasis”.

Actually producing veggies we could eat would be nice but that would be more of a by-product. I was equally interested in the gardening experience in itself and all that excitement that comes with planting seeds and waiting, waiting, waiting for that very first green shoot to finally poke its head through the soil to greet the sun and a whole lot of eager watching eyes. The kids would love it. I remembered picking beans straight from my grandfather’s vine and just how amazing that was. As a child, it was a veritable miracle!

Moreover, being somewhat of a life-lesson addict, I thought the routine of having to water our plants was going to be good for the kids as well. Routine, responsibility, nurturing…these are all important life skills. Things perhaps you could learn from books but I really doubted you could learn them from playing Minecraft, even if you do get to grow virtual crops!  They need life experience as well. To do things with their hands aside from pressing buttons all day.

There was only one drawback to my veggie garden scheme.

Me!

Although I’ve always loved gardening and used to have quite a green thumb and have grown my own herbs, bulbs etc even in our exceptionally barren and sandy beach soil, I’m not good at keeping up the watering and so many, many plants have died from thirst.

In other words, I’ve become a plant killer.

Now, being a loving, caring and nurturing person at heart, I’ve had more than a little guilt over this and stopped buying plants until we could get the watering system going again. We’ve been on drought status and water-restrictions for many years but now we have no excuse. Water restrictions have eased and while we still need to be responsible about our water consumption and I do tend to re-use water at home, we can actually water our plants.

However, I have a very bad track record. It all starts out alright but slowly but surely the watering tapers off and without rain, we all know what that means.

But I am always a firm believer in change. Personal growth. After all, we are fluid, flexible beings. We’re not set in stone.

So after expressing my interest in starting our own veggie patch, my friend gave me a handful of dried beans filled with seeds with the potential to create our very own bean plantation in our small, yet to be constructed, backyard tub.

I carefully, put the beans in my handbag trying to think of the right words to tell Geoff, ask Geoff, to build our veggie patch. It wasn’t exactly the best timing but it was something we could do together as a family and I wanted the kids to learn all about gardening, soil, watering, worms…our environment. We have had a worm farm for 4 years and so this would just be an extension of that and indeed it would be a great use of all our juicy, fertile worm dirt. It no longer go to waste just sitting at the bottom of the tub. We would convert it to lush, fresh produce oozing with vitamins and none of the horrible chemicals. Perfection, in other words.

But as I said, this isn’t exactly the best time to launch into new gardening project even a small-scale because we are currently struggling to manage the everyday stuff and when you consider Maslow’s Hierarchy of Needs, growing your own veggies is more of a luxury not an act of survival. At least, when you live walking distance to at least three huge supermarkets and a great fruit and veg shop, it is.

I guess this is where I really have to stop being cryptic and answer your “please explain”.

You see, I haven’t really explained or updated my health status for some time. Even though I am fairly open about my life, I have struggled to find the words and it is difficult to tell people when things get worse, when I have a setback because I know that even people I haven’t met in this weirdly intimate world of blogging, care about me.  We are only human and you don’t need to meet in person to be a friend, to love or to care. My situation is also quite emotionally charged because I have young kids and it’s not nice having to think about children potentially growing up without their Mum but that is what we live with. We are conscious of this as a possibility as it is for any one of us. We are just more conscious of this possibility than others and can actually take steps and plan ahead. Not for the eventuality but the possibility. While this shadow lurks around,it also enables us to capre diem seize the day and squeeze the marrow out of life. We have fun!

Anyway, a few months ago, I developed pneumonia. This wasn’t as bad as pneumonia gets but it was pretty awful and I spent 3 weeks in bed and was coughing so badly that I pulled muscles in my stomach. That’s never happened before and that was really scary and it hurt. We put the kids in before and after school care for 2 weeks straight…something we’ve never done before. It was a big deal. Things were pretty serious and we were considering hospital but there was also the risk of catching something else in there so Geoff wanted to keep me at home.

My GP sent me off to get lung x-rays and these showed some issues so I went for an updated CT Scan. I’d had my last CT scan two years ago and it had shown mild institial lung disease, which is a form of fibrosis. This wasn’t considered a problem at the time but they started monitoring things more closely. This is a nasty disease and it kills. But treatment is available and of course, works better when you catch it early, which we have. Monday I saw my rheumatologist. Tuesday his secretary called and Thursday I started chemo along with transfusions of methyl prednisone, which has all the reverse side-effects of the chemo and makes you really bouncy, euphoric and unable to sleep. It’s like buzz! Buzz! Buzz! All this steps are designed to reduce inflammation and gain control of my disease.

This situation may not be ideal but I am certainly in the best position to mount a counter offensive and I am also looking at other ways of improving my lungs such as swimming and playing the recorder.

Of course, the side-effects of the chemo can include losing my hair. I almost had to laugh at that because after taking 6 years to finally get my hair cut off and being really pleased with the results, now I was being threatened with losing the lot. 90% of me didn’t care as I had no doubt that losing my hair was nothing compared to saving my lungs. I need to breathe. But at the same time there was still a residual “growl”. I figured that it would be just my luck for my hair to fall out just when I’ve got it all sorted.” I really do love my new hair.

So far so good. My hair has stayed put and I’ve had none of the expected side-effects from the chemo aside from fatigue. I have a few buzzy days after my treatments from the prednisone and then a few days feeling wasted and then I’m back on deck for the next one.

While chemo might and I guess certainly does sound depressing, right from the start I have been telling myself that it is only six weeks. Being in the lead up to Christmas, I thought of the kids countain down the number of sleeps until Santa arrived and I would do the same…6,5,4,3,2,1…blast off!

This really helped me face my first treatment and now that the side-effects are nowhere near as bad as I’d expected, the countdown isn’t really an issue. I had my third treatment today so now I’m officially halfway. It’s all been going so quickly.I also made jokes about getting chemo for Christmas, which in reality is the best Christmas present I could have. Treatment and hope. These are a gift.

Yet, to be perfectly honest with you, the important thing isn’t just surviving chemo and getting through.

What matters is that it works. That my auto-immune disease responds and goes back into its cupboard and doesn’t come out.

A rainbow of hope.

A rainbow of hope.

That’s the real waiting game. My cough has dramatically improved. Yet, as positive as I am, I still have doubts. Just like the seeds of faith, the seeds of doubt can also germinate and grow like crazy…the weeds in the garden of hope.

That’s where my ultimate New Year’s Day present comes in…those bean seeds.

It didn’t hit me straight away but those seeds were almost like a promise ….a hope. I will get better. Those seeds are offering me the vision of a brand new life and healing…renewal. I cling to that hope and pray!

Now, I don’t know that for sure. My disease has been pretty resistant in the past but it has also responded…eventually. I like the science behind my new treatment. I will also be treated with a drug called rituximab after the chemo and it is a much more targeted therapy without the toxicity of the chemo. It really could be the treatment that will ultimately work for me and you can only access it after other avenues have failed due to the cost.

So it could be that while this setback is serious, it could well be that coldest time of night before dawn. That this new treatment should and could be the solution!

That is our prayer and our hope.

I would love to receive any words of encouragement or stories of overcoming the odds. It would mean the world to me.

Love & best wishes,
Rowena xx

I was given a handful of dreid golden beans filled with seeds….the makings of our new veggie patch.