Tag Archives: alphabet soup

Weekend Coffee Share 9th July, 2016

Welcome to Another Weekend Coffee Share!

This week, I’m offering you a mug of alphabet soup. Not just because it’s Winter here and a mug of soup somehow seems to warm you up inside and out, but also because I’ve been reading Roald Dahl’s English Dictionary. So rather than actually swallowing our soup, I reckon we should fish out the letters and see what we get. I wonder if this counts as “Gobblefunking with words”? Sounds close enough to me!

Dahl Dictionary

The big news here is that the kids are on school holidays, which in some ways means that I’m not on school holidays but on the other hand, I’m not driving them around as much, so at least Mum’s Taxi is having a break. Next week, it’ll be getting the engine back into gear driving the kids to and from final rehearsals and at last performances of the Gang Show…a variety show put on by Scouts, Guides and their leaders. This year, it’s called “Once Upon A Time” and includes songs from Walt Disney, Dr Suess and Monty Python. I’m really looking forward to seeing the show and seeing what it actually is as well as seeing the kids. We’ve never been to a Gang Show before.

I am feeling much better today. I’ve had some trouble with a chest infection, asthma coughing etc and after being on antibiotics and taking all my asthma medications, i finally bit the bullet yesterday and bought a cough syrup with codeine and had a great night’s sleep. I actually feel alive today, which makes me realize I’ve been off for a few weeks. There might even be a spring in my step, even though it’s still Winter.

So, how are things going with you? Well, I hope!

My family history research battles continue. I don’t know how many of you have delved into family history research but I love it. Once you get through the people you know about, that’s when the detective work begins and for better or worse, I show no mercy. I am a detective/journalist at heart pursuing the story like a dog hunting down a bone. Thanks to the Internet, you can unearth so much buried treasure these days, although most of it is either birth, death, marriage notices unless your ancestors got themselves in a spot of trouble or had accidents of some sort. That is unless they actually achieved something.

Anyway, I’m trying to find out where my grandmother’s family, the Gardiners, actually came from. I don’t know whether it bothers you where your ancestors came from or why they moved from one side of the world to the other but it bothers me. I need to know, especially as my grandmother saw herself as Irish Australian but it could well be that she’s mostly English, which changes the story quite considerably. As it stands, our Gardiners could be English, Irish or Scottish and I want to find out.

After too many dead ends to mention, I’m hoping I’ve finally found John Gardiner’s death certificate. I thought I’d sensed a convict in the mix when I couldn’t find things easily. If this is our John Gardiner, he ended up changing his name to Gardiner-Garden after becoming a senior figure in the NSW Education Department. Whether he’s our John or not, he’s certainly a character and reminds me of Mrs Bucket from the English comedy show Keeping Up Appearances who called herself “Mrs Bouquet”. Nothing like covering up your tracks!

This weekend, we’re doing a bit of work on the house. We’re replacing our kitchen pantry and also adding new curtains to the lounge room. The pantry was a gift from some friends who are moving and I managed to pick up these New-looking Ikea curtains from the opportunity shop for $10.00 each. So, the lounge room is looking well dressed for $40.00. While it’s been great to pick up Ikea curtains for a bargain, the convenience is even better. We don’t have a big shopping centre close-by and it’s much easier for me to buy from the op shops than travel somewhere. Moreover, Ikea is about 2 hours away. So, my bargain was quite a win!!

These new curtains will really brighten up the lounge room, which has been feeling a bit dark and dull during Winter and this is where we spend most of our time. They’re a rosy burgundy colour with a real sheen in the fabric and they really shine in the light.

Getting back to the school holidays, the kids are currently stayed with my parents. My son went down a bit earlier, which left my daughter and I playing Monopoly and doing some cooking.

When did you last play Monopoly?

I’m not really sure whether I like playing Monopoly or not. However, the trouble is you need time to get through a game and usually our games peter out, rather than reaching THE END.

However, time is what you’re meant to have in the school holidays and you’re not supposed to be “too busy” when your much loved and cherished offspring desire some “Mummy Daughter time”. My daughter is big on this even though that phrase really makes me cringe. Cringing aside, I behaved and we played Monopoly. I am not someone who deliberately lets kids win, but I’m not a sore loser either. However, I am human and am not ashamed to admit I don’t want to bomb out and go broke on my first couple of runs around the board.

Early on, I made some joke about her living it up at Mayfair and Park Lane, while I’m slumming it over at White Chapel and Old Kent Roads. I should’ve kept my trap shut!! Sure enough, that came to pass. Fortunately, the game “ended” before she ventured into hotel management and wiped me out completely.  Phew!

DSC_1867

My daughter’s Dish.

That was Wednesday. Thursday, she decided we were having a Mini Chef Mystery Box Challenge. We each had to choose 4 secret ingredients for each other to use in addition to an open pantry. This was a really fun idea…even if she was trying to throw me by selecting tuna, sardines, salt and Grain Waves for my mystery box. I fed the sardines to the dogs and we had a sexy variation of tuna mornay for dinner. So, here’s Challenged By My Mini Chef.

DSC_1866

My Dish.

If you’re looking for a bit of a laugh, here’s a post I reblogged from Cooking With Whiskers about making hats for your cat. I’ve sent the link to the kids so Grandma’s cat had better beware of the hats! Here’s the link.

After chatting about all of this, I almost forgot to tell you that we still don’t have a result for the Australian Federal Election. It’s looking like the Liberals under Prime Minister Malcolm Turnbull will be returned but we’re yet to find out the final numbers. I just hope that the next 3 years doesn’t turn into an excuse for a political nonsense down in Canberra.Much needs to be done and we’re not paying our politicians to fight among themselves, although that might come as a bit of a surprise to them!

What have you been up to this week? I hope you’ve had a great week and I look forward to catching up!

This has been part of the Weekend Coffee Share hosted by Diana at Part-Time Monster. You can click the  linky to read the other posts.

Best wishes,

xx Rowena

 

 

Terminal Cyberchondria…Yes! Please!

Being a blogger, a writer, reader and someone who likes to take responsibility for their own health, I’m a prime candidate for Terminal Cyberchondria. While not necessarily terminal in the sense of being life-threatening, you catch Cyberchondria from your computer terminal and more specifically by surfing the Internet for a diagnosis when you have more than a few “vague symptoms”.

Of course, having cyberchondria assumes that you are catastrophising again and your suspicions are wrong. That you have more chance of being killed in a car accident, or while riding a bike, than contracting that dreaded disease. No chance at all!! You don’t even need to cross your fingers, pray, say your Hail Mary’s. It’s all made up. In that great Australian tradition:”you’ll be right mate”!

However, once you’ve been struck by one or two rare, life-threatening diseases, that automatically opens the flood gates for you to develop any weird and wonderful disease… even the dreaded Ebola virus. After all, it only takes one infected person to board a train and it will spread faster than wildfire.

Well, I don’t have to worry about catching Ebola.

That has nothing to do with the fact that I live in Australia. Rather, you can pronounce and even spell Ebola and people have heard about it. That gives me automatic immunity. I specialize in the weird stuff…phenomenon even the doctors have to Google.

Anyway, since I had chemo at the start of the year, I’ve been having serious short-term memory issues and virtually no concept of time. For quite awhile, I’ve written these difficulties off as chemo brain, which is quite a common experience. In a way, this has been an interesting, quirky, experiment but I’ve now decided that it’s gone on long enough. I’m seeing my neurologist tomorrow.

There is quite a list of possibilities for my memory troubles:

  1. Chemo brain.
  2. Menopause.
  3. My shunt playing up. (I have hydrocephalus)
  4. Staying up too late.

However, I also started wondering whether these memory difficulties were side-effects of the new drugs I’ve been taking since I finished chemo. I’m on a drug called cellcept, which represses your immune system.

Google: a cyberchondriac's best friend.

Google: a cyberchondriac’s best friend.

When I Googled its side-effects, that’s when cyberchondria really kicked in. These side-effects include a virus that attacks your brain. In keeping with the unpronounceable dermatomyositis, this brain infection is called progressive multifocal leukoencephalopathy (PML). PML can be fatal. Symptoms include clumsiness, weakness that keeps getting worse, not being able to move or use one side of the body, and changes in vision, speech or personality (such as not caring about things that you usually care about and confusion).

After finding out the name of this dreaded disease, I’m wondering whether the people who name these weird and wonderful diseases and conditions, go fishing in their alphabet soup to put the names together. It has been hard enough to deal with “Dermatomyositis”, which is a serious mouthful but it only had 14 letters. The last word alone in PML has 19 letters. That must mean it’s very nasty indeed.

Going fishing in their alphabet soup. Is this how scientists name rare diseases? I'm starting to wonder...

Going fishing in their alphabet soup. Is this how scientists name rare diseases? I’m starting to wonder…

When I discussed the complexity of these medical terms with Geoff, he pointed out that they are intended to be descriptions so a medical person can quickly identify what is likely to be a complex medical situation far better than simply calling it: “Fred the Super Really Bad Disease That’s Going to kill You”. I can see his point but that still doesn’t help me explain what I’ve got and get any kind of acknowledgement from anyone outside the medical fraternity.

Ironically, while I have these two exceptionally rare medical conditions, I still have my tonsils, appendex and adenoids…all those bits people commonly have out and that’s what concerns me about PML. It’s rare enough and hard enough to pronounce, that it’s just my kind of disease.

You see, despite the cyberchonriacs, there are those rare winners of life’s rare lotteries who actually have what they thought they had. Yes, they actually have contracted one of these exceptionally rare, systemic, really nasty diseases. You know the type of thing that used to show up on the hit medical series House. Instead of being free to continue their explorations in cyberspace, before they even know what’s hit them they’ve been admitted to hospital. Yes, the proverbial Mac truck of bad luck was heading their way and they’ve just taken a very direct hit.

That’s me.

Dermatomyositis is a rare, systemic auto-immune disease where your muscles and skin attack themselves. It affects about 1 in 100,000 people and I’ve only met one or two people with the disease. You can get painful skin rashes and your muscles breakdown resulting in muscle weakness and wastage. While there is no cure, there is treatment which is largely effective although my case has proved more difficult to manage than average. The way I see it, I’m fighting myself and being rather strong willed, it’s been quite a battle. Dermatomyositis can also affect your breathing, swallowing and digestion and there are also the side-effects of the drugs and treatments. I am really surprised that I don’t glow in the dark after all my treatments. I’ve even had the Big C. That’s right. They’ve even blasted it with chemo. Thank goodness it worked.

However, while the medical treatments can be annoying, the hardest thing about having dermatomyositis has to be trying to explain it to anybody. I don’t know if you recall the Decore shampoo   commercial a few years ago where they had the person singing in the shower going: “D…D…D…Decore…Decore”. Dermatomyositis should be classified as some kind of tongue twister. I gave up trying to explain it years ago and just said I had muscular dystrophy. I thought it was a form of MD but it’s officially a neuro-muscular disease. Consequently, I now say it’s related to Muscular Dystrophy. However, if our son is around, he smiles with a baffled expression and tells people point blank: “You don’t want to know.”

Anyway, when you have a very rare disease, it opens the floodgates for all sorts of other conditions. After all, no one can tell you that rare can’t happen to you. Your last name might not be Murphy but bad luck sure knows how to find you!! It has your landline, your mobile and even your email address.

There’s a famous quote from the movie Casablanca which makes me smile:

“Of all the gin joints, in all the towns, in all the world, she walks into mine…”

That might have happened with dermatomyositis but hopefully, progressive multifocal leukoencephalopathy has somewhere else to go. It will board that plane with Ilse and Victor Laslo and disappear way beyond the clouds. Poof!

Goodbye Progressive Multifocal Leukoencephalopathy  (PML). Have a nice life!!

Goodbye Progressive Multifocal Leukoencephalopathy (PML). Have a nice life!!

Wish me luck with the neurologist tomorrow.

I don’t mind being told that I’ve over-reacted. A bad case of Terminal Cyberchondria is exactly what this patient has ordered.

xx Rowena.

If you are looking for information about dermatomyositis, which is a form of myositis:

The Myositis Association of America: http://www.myositis.org/learn-about-myositis/types-of-myositis/dermatomyositis

The Myositis Association of Australia: http://myositis.org.au/