Today, my husband and I went and bought a pop-top caravan with a longer term vision of road trips. However, the reality is that we’ve bought the caravan to protect me from catching the coronavirus from the family. We bought something small and cheap which will fit in the backyard alongside the boats, and it needs a lot of work. However, at the end of the day, we’ll have something which is our own and almost becomes a member of the family. We’ve decided to call it: “The Dog House”. That’s not only because it will be parked out in the backyard with the dogs. As you may be aware, “being in the dog house” is when a bloke is in trouble with his wife and he might be sleeping on the couch but the saying is that “he’s out in the dog house”.
For those of you who have been following Beyond the Flow for some time, you’ll be aware that I live with a severe auto-immune disease, Dermatomyositits which attacks my muscles and that as a complication of this, I’ve developed Insitital Lung disease with fibrosis in my lungs. I live with 50% lung capacity on a good day, and I also know what it’s like trying to get through a really bad day. A few years ago, I caught pneumonia and stopped breathing for a split-second. I was coughing and coughing and coughing and suddenly there was nothing. Fortunately, something popped and cleared my lungs and I was still alive. It took months for me to get out of danger and my lung specialist bluntly told me that if I caught anything else, I’d be finished. This pneumonia also triggered a flare of my auto-immune disease. So, I also ended up having chemo to halt that. So, you see, I have a pretty good idea of what it could be like to catch the coronavirus and what it would mean for me and our family…or the extended community. This is not something to treat with our usual Australian indifference. The “she’ll be right mate” attitude. Some of us will be right. Some us us will still be here but with scarred and damaged lungs, and others will be gone, especially if we as a community don’t take transmission seriously and self-isolate as much as we can. That said, I haven’t completely quarantined myself yet. Not knowing how long this thing could hang around for, I am being very selective.
I also wanted to share a Facebook post from one of my dear Muscular Dystrophy friends, Cassie who is in her 20s. I won’t say much about her except to say she’s stretched and extended herself well beyond her disability and conquered so many hurdles. Then, something like this virus comes along, and it isn’t about fear or anxiety. The threat is real. Anyway, here’s what she had to say:
“I haven’t said much about this covid-19 but here is my piece to everyone that may be belittling it or panic buying and hoarding.
This is more than a common cold. sure some minor corona virus’ cause the common cold but this is worst than the flu. Those people panicking, filling up hospital beds and hoarding supplies, you are being totally unfair on everyone else who still needs those products too.
So many people I know, including myself are vulnerable to death from this virus. Surely by knowing me you would realise our lives are worth more than such flippant and infuriating (to me) statements that ”it is just like a common cold” or ”it won’t effect me”. By saying it is not that big of a deal stops people taking infection control seriously resulting in people like me dying. ask yourself how many people do you know with emphysema, copd, asthma, heart disease, weakens immune systems, cystic fibrosis, muscular dystrophy and many other conditions? how would you feel if you potentially carried covid-19 to then they died? just because ”the old and weak” as society deems us often die with any spreadable disease doesn’t mean we shouldn’t be taking this seriously and taking measures to protect EVERYONE. MY LIFE MATTERS TOO AND I DON’T WANT TO DIE!!!”
You’d have to be made of stone if these words didn’t strike you like an arrow through the heart. It’s also a wake-up call to people who aren’t taking this seriously. Do you want to be the one who passes the virus onto someone else who then goes on to die? If we’ve taken the best precautions, then we don’t have a case to answer for. However, if we’ve stuck our head in the sand, then we’re accountable. There have been pure bred idiots who have gone to the supermarket on the way home after being told to self-isolate because they’ve been exposed to the virus. OMG!
Anyway, I wanted to share this this with you. Let you inside the world Cassie and I share with so many people who have lung and other medical conditions so you can walk in our shoes for a bit. Breathing in through our lungs, and know what it means to struggle for every breath. I would do anything to stop someone from getting this thing. Like Cassie, I am also determined to stay alive. This should be a no-brainer, but more caution is needed.
Please be cautious. Please be kind.