Tag Archives: MND NSW

Motor Neurone Disease (MND) Awareness.

Today, I’d like to introduce you to my much loved school friend, Kirsten, who was diagnosed with Motor Neuron Disease (MND).
Having known Kirsten for much of my life, it’s hard to find the words to do her justice. So, I will hand over to her and her most recent post about the efforts of her daughter and niece, to educate and fund raise at school to support MND.
On a personal note, I live with a chronic autoimmune disease, which attacks my muscles and lungs. Prior to treatment, I was severely ill and spent around nine weeks in hospital on diagnosis. However, there was treatment, even if there was no cure. The importance of treatment is something we should never take for granted.
Now, I’ll let Kirsten speak for herself…

Best wishes,

Rowena

Kirsten Harley

My gorgeous niece Susy is in the high school leadership team that decided to organise an MND fundraiser. In lieu of me speaking – because, y’know, the whole no-larynx-bed-103 situation – Kimi and Iwrote this for Susy and her to read in assembly. To say I’m proud of these two doesn’t come close!

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We were going to ask Kirsten Harley, my auntie and Kimi’s mum, to come and talk to everyone about motor neurone disease. But in November she had her voice box removed as part of life-saving surgery to connect her to a ventilator, and she is still in hospital.

So she and my cousin Kimi have written this and weI will play some video from 2 years ago.

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Everyone, put your hands in your lap. While this is being read, imagine that even if you try your hardest, you can’t move your arms.

Now, imagine…

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