Tag Archives: NDIS

Weekend Coffee Share… 19th March, 2018.

Welcome to Another Weekend Coffee Share!

How was your week? Oops! By now, I’ll also have to ask about your weekend. Perhaps, in the interests of brutal honesty, I should really be calling this “Monday Night Coffee Share”. However, as I’ve mentioned before, I usually take advantage of other time zones to sneak in under the radar. I just won’t verify the time in the Sandwich Islands.

My apologies for my evident neglect. However, weekends can get pretty flat out here and it can be easier to post on Mondays.

This week, I’m going to do something a bit different and run backwards through the week.

Amelia YIPA Photo

Yesterday, we saw our daughter perform her ballet solo for the first time on stage, when she auditioned for a local Youth in Performing Arts Mentorship program (YIPA). This is open for youth aged from 1st year high school (12-13 years) through to 21 years. To be perfectly honest, I’m not sure exactly what getting through actually means but there will be a series of concerts in May.

However, that’s only the business side of things and that wasn’t on my mind as I watched our daughter dance. I was spellbound. She was like a real life incarnation of that little plastic ballerina twirling around in my childhood jewelry box to the tune of “Love Story”. She had such elegance and poise and moved like a real, live, mini ballerina. How was that so? It was an absolute miracle. Well, after so much practice, dedication and natural ability, she didn’t just pop out of a cereal box. It’s been a long journey which all started out as a tiny little girl, and the very same teacher who has helped bring our little dancer out. I’m simply her taxi and officially trip over both feet. Well, I am a lot more than that. It takes a lot more than driving a taxi to encourage and mentor your children.

You can read more about her performance Here: The Unbelievable Lightness of Being

DSC_8468.JPG

Gosford Sailing Club, NSW, Australia.

Rewinding to Saturday, we went out for dinner at the sailing club with my parents for a belated celebration of the kids’ birthdays. The sailing club has knockout water views, which sort of goes without saying. My parents managed to see Mr’s boat out on the grass, not quite the same as in the water, but better than nothing. We enjoyed watching the sunset and darkness sweep across the marina and the lights come out. There was also an engagement party in the adjacent party room and we had great fun watching the fashion parade go past. Been awhile since I’ve been to one of those. 

Last week, I got stuck into my application to have my recent NDIS plan reviewed and it’s almost ready to send off. The NDIS is Australia’s National Disability Insurance Scheme and was intended to improve the quality of life of people living with disabilities. However, in the usual way of government programs, it has also promised a lot and delivered a lot of headaches. When I received last year’s plan, I was over the moon. I couldn’t believe how generous it was. In many ways it was, but when it came to providing much needed equipment, participants across the board have experienced extensive delays only to have the equipment knocked back despite genuine professional reports from Occupational Therapists. I was guttered when my request for an electronic chair was knocked back. It was knocked back because I can walk, ignoring specifics of my muscle weakness which make it difficult to get out of chairs, particularly comfy chairs. So, the social activist in me, is fighting back.

My battles with the NDIS put a big dent in my mood last week. I’ve been having to delve into the darkest depths of my complex medical diagnosis and document the lot. It’s no time for positive thinking, post-traumatic growth or pushing myself beyond the beyond, which is my usual modus operandi. While I wouldn’t say that I’d reached dangerous mental territory, I knew I wasn’t okay. That’s when I heard the words of a young woman Dolly Everitt who took her life in January in response to cyber-bullying: “Stand up. Speak even though your voice is shaking.” I realized that these words cover so many situations and contain such truth. That its hard to tell others when you’re not okay, and it’s equally hard to know what to say or do, when you know someone is not okay as well. So, I guess the thing is, to push beyond all of that and it doesn’t matter if it all comes out wrong. That a shaking voice is better than no voice at all.

I probably should apologize for getting deep, serious and drifting towards the dark side of the moon. However, most of us spend too long skirting round the edges and perhaps it’s time to dive in. Or, perhaps that should read dive out. Reach in… and reach out? Clearly, I’m writing and thinking at the same time and should possibly think first and write late. However, by then it would be time for next week’s coffee share.

DSC_8389

Meanwhile, the pups are providing comic entertainment. Pups are notorious for pulling on the lead. While Rosie and Zac are pretty docile at home, put the lead on and some deep sled dog instinct fires up and they take off like bats out of hell. It takes a really strong hand to keep them in line, and so I take Lady and our son takes one or both pups. This afternoon, our son popped into the supermarket and let his mate and I outside with the dogs. Zac couldn’t cope and starting howling and leaping trying to catch up to him. From our perspective, it was sweet he loved him so much. However, we got quite a few judgmental stares from passersby who clearly thought the dog was mad and we weren’t controlling him well enough. If you’ve ever had a two year old throw a tanty in the supermarket you’ll know the gist of it.

camera-ted-strutz

PHOTO PROMPT © Ted Strutz

Lastly, thought I’d just mention this week’s contribution to Friday Fictioneers: Capturing the Moon

Well, that at least sums up the last week. How was your week? Hope you had a great one.

This has been another Weekend Coffee Share, hosted by Eclectic Alli.

xx Rowena

 

 

Weekend Coffee Share – 18th February, 2018.

Welcome to Another Weekend Coffee Share!

Well, to be perfectly honest, it’s no longer the weekend here and it’s almost bedtime Monday night. However, we’re a global community so I decided to latch onto someone else’s time zone. How about it American Samoa? It’s just gone midnight over there.

So how was your week? What about your weekend or even the start of the week? I hope things are going well for you.

The last week feels like a blur, but I’m sure I did something. Went somewhere.

Love

That’s right. Wednesday was Valentine’s Day. Valentine’s Day isn’t a huge thing in Australia, especially once you’ve been married for awhile. That said, my husband brought me some chocolates and flowers and I gave him a non-Valentine’s Day themed book, which was actually about stretcher bearers in WWI and WWII. While the bookseller showed me a rather of books on the philosophy of love, those clearly looked like for myself. Mind you, when I spotted a book about the notorious prison, Pentridge, I thought I’d made a good choice. Imagine giving that to your better half as a gift? Being married to you is a prison sentence. Even if it is, that would certainly dampen the Valentine’s Day spirit.

If you joined me last week, you might recall that my application for an electric recliner was knocked back by the National Disability Insurance Scheme (NDIS) after a 10 month wait because I can walk.

Well, the good news is that I’ve managed to pick up an electric recliner chair for nothing and am now able to raise and lower my legs and dear self out of my chair without contorting myself. A friend of mine found out about it on a site called Free Cycle and it was just around the corner and the people very kindly dropped it off for me. How good was that! Faith in community…100%. Faith in NDIS…? Think I might be diplomatic and not give them a score. Anyway, although this chair is 13 years old and onto its third owner, it’s brought me great relief.

On Saturday, I extended myself well beyond my comfort zone when I volunteered for the scout sausage sizzle at our local Bunnings Hardware Store. Well, that’s if you can call it volunteering. Both of our kids are going to Jamboree next January and the fundraising has begun. Our troop is very fair and transparent with it’s fundraising for Jamboree. You do a shift per child and the profits are only split between the families there on the day. Every bit helps. I must say a black hole is swallowing up our finances, which very well have my name on it but it’s easier to blame a malevolent, nebulous force than to accept personal liability.

Getting back to the BBQ, as I said this was a bit of a stretch for me. I have some coordination issues and so slicing up the onion or cooking the sausages seemed a bit beyond me, but serving and needing to count change also felt rather daunting. I never count my change and consider myself functionally innumerate. However, I managed well. Only slipped up when some pesky person decided to shout his mate and I had to calculate a few sangers, drinks…oh boy!

This week, I had a post published over at Smorgasbord  hosted by Sally Cronin. Perhaps, you might have read Life Is Meant To Be Easy. Even so, I still encourage you to pop over and read the comments. They are quite encouraging.

I have been getting back into the blog lately, which I’m enjoying. This week, I participated in Friday Fictioneers again, writing: The Snow Job. I also wrote about trading my high heels in for sensible shoes in Finding My Happy Feet.

red shoes

Carpe Diem: Seize the Day!! It’s are rare occasion that I’m able to wear heeled shoes but I wore these fabulous beauties to my cousin’s engagement party at Circular Quay.

Our daughter’s 12th birthday is coming up this Saturday. She’s having a slumber party and we’ll be setting up the tent once again in the backyard. I think I have much to worry about here but I don’t think the onslaught has registered yet.

How has your week been? I’d love to hear from you.

This has been another Weekend Coffee Share, hosted by Eclectic Alli.

Best wishes,

Rowena

 

Weekend Coffee Share 26th March, 2027.

Welcome to Another Weekend Coffee Share!

You’ve struck it lucky this week. After weeks and weeks of torrential rain, today I can finally offer you a cup of sunshine, which, when you’d been deprived of sun for so long, is pure gold and way better than a measly tea or coffee.

The sun is shining. So, why on earth am I sitting inside on my laptop when I should be outside seizing the rays?

It’s okay. I’m working on it. I’m still waking up and trying to psyche myself up for my “twenty minute walk”. Now that the rain’s stopped, I’ve run out of excuses for the physio. So, I’ve gotta: “Move it! Move it! Move it!” I almost feel like praying for rain. And for all of you motivation types, I know I’ll enjoy it once I get started and that it’s about time I went and checked out the beach before Winter sets in, but the power of the couch is very alluring.

I am finally starting to get a bit of direction and focus at last.

About a month ago, I received a rather generous assistance package through the National Disability Insurance Scheme (NDIS). This included a physio, Occupational Therapy and psychology combo as well as a personal mentor, 9 hours of cleaning and a budget to really Spring clean the house and get it back in order. Ten years of chronic illness have truly swamped the place!! So, at the moment we’re getting started. Friday, I began the dreaded process of sorting through about 5 in trays, hoping that by now, all that paperwork was well and truly redundant and headed straight for the WPB (waste paper bin AKA recycling).

Woy Woy March 20

Taken on one of my recent “ten minute walks”.

The other advantage of getting rid of this excess paperwork, is that it distracts the mentor from culling my collections. After all, if anything is well into that endangered category of “not being used for the last 6 months and collecting dust”, it’s my collection of antique and vintage tea cups. Moreover, even I have to admit there’s considerable “excess”. However, before I do the hard yards sorting through my beloved “old ladies”, I’d much rather throw out the old school notes.

1936 Eunice in London

Meanwhile, I’ve been head down tail up transposing newspaper articles about my grandmother’s career as an international concert pianist. These started going online the week of her funeral, which was rather freaky at the time when articles from 1935 suddenly started rising to the surface. I am viewing her career through a much broader social context, which is much more time consuming but has created a much more interesting story line. For example, there was a review of a London performance which she’d kept as a clipping in her scrapbook. However, when I found it online this week, I read the full article which mentioned the arrival of Sudeten Jews in London in 1938 and how Jewish children were being adopted by English families. It’s fascinating reading history forward instead of reverse, which, of course, is how it was experienced.

One thing which has been quite interesting about researching my grandmother’s journey, is that I am reading all these facts, stories etc as her grand-daughter, a writer-storyteller and researcher and NOT primarily as a musician. I read the list of her performance pieces like a shopping list, yet without the  recognition. I’ve been ploughing through the articles and trying to get through them all and so stopping to listen to the music itself hasn’t been a priority. However, I finally Googled Beethoven’s Waldstein and a few others, and they were as familiar to me as breathing. They were such a part of my childhood and I remember falling to sleep to them on my parents’ laps. It’s so precious to relive these moments, even if it is through the exceptionally humble speakers on my laptop. So, I am inspired to listen to these more and to get the stereo operational. That is, if that thing is still called a stereo!

Meanwhile, real life realities always beckon me back from the joys of research and discovery. I’m finalising my daughter’s application for the local high school, while we wait on the results of the selective schools’ test. This involves an academic test for selective class and three auditions for the CAPA or performing arts stream. These auditions are filling me with dread. STRESS x 3 is not something to look forward to and I am becoming quite an adept motivational coach as she does various auditions. It’s just lucky that I’m a natural performer. It’s just an ironic twist that I don’t have an act, unless you include stand-up comedy after my latest trip.

dancer box

Just as well I have my own creative and stress outlet. Tomorrow night, I have my last contemporary/jazz dance class for this term. I am truly going to miss these classes. We have so much fun. Not only with the dancing, but with the hilarious commentary, my pink satin ballet shoes with ribbons attached and the way so many of us seemingly “breathe out” during these classes. I know this sounds like a paradox, because learning dance as an adult sounds very intense and it’s such a perfectionist thing, but we’re not trying be prima donnas. We’re wanting to stretch ourselves physically, psychologically and philosophically and laugh from head to toe. It’s magic…even if my dancing has a way to go!

I have cut back on writing on my blog this year. However, I am still enjoying writing my weekly flash fiction for Friday Fictioneers. You can read this week’s effort here.

So, how has your week been? I hope it’s been great and that the week ahead goes well for you too!

This has been another Weekend Coffee Share hosted by Nerd In the Brain. You can join in the  Linky.

Xx Rowena