All this motivational quackery was rubbish. My journey of a thousand miles was never going to begin with this step, and it wasn’t going to head straight up a flight of stairs either. Surely, there was a lift? Yet, I couldn’t bring myself to ask. Twenty-five years young with the rusty joints of an eighty year old, I was done explaining. I’d shut shop. It was much easier to stay home. Yet, that wasn’t a luxury I could afford. Lingering between the lines of disability and wellness, I had to work. If only I had the wings to soar….
For those of you who’ve known me for awhile, I live with some chronic health and disability issues. When I was 25, I was diagnosed with hydrocephalus and had brain surgery to insert a shunt. My road to recovery felt like it was straight up the side of Everest without any safety equipment or assistance whatsoever, even though I was not alone. I really had comprehensive and loving support from my family friends and particularly my OT at Mt Wilga, who really helped me get through this incredibly hellish experience. Yet, I was the only one who could walk in my shoes. I was the only one who truly knew what it was like to put one foot after the other. I still had a job when I was going through that and yet my return to work date kept getting put back and their were complications. The valve of the shunt malfunctioned and I needed further surgery, which I really didn’t expect to survive. By this stage, returning to work seemed hopeless. My relationship had all but ended and it was a bloody hard slog. Yet, through all of that I always saw myself as a career woman. Work was very important to me. I ended up getting a part-time job and then landed what seemed to be my dream job in an advertising agency but the hours were very long and it was very stressful and one night I collapsed at Central Station from sheer exhaustion. I had to slow things down. Find a new path. One that wasn’t quite so steep and allowed me to heal. This was a huge life lesson for me and I clearly remember being told that I was a “human being and not a human doing”. I have a lot of adjustment to do and that is ongoing.
I would like to take this opportunity to raise awareness of the kinds of barriers people face when it comes to returning to work or finding a job when they have a disability, health issue or are just battling with life. How can we make their path a little bit easier? How can we reduce the load? What are we doing as a community to make their battle worse? Indeed, the finger of blame falls too quickly on the survivor instead of a helping hand.