For the last 12 months, I have been in the compassion business and yet, so often I feel like slapping people straight in the face because they refuse to be happy. Instead, they’ve buried themselves in a deep hole and I’m starting to wonder whether they actually prefer it there. You see, all the means of escape are within easy reach, but they completely ignore them.
There are many reasons for this. Perhaps, they don’t feel they can change their circumstances. They have been given a diagnosis, or label, that supposedly renders them helpless. Or, they are just a bit overwhelmed, shocked and befuddled and might need a bit of assistance. After all, when you are going through a hard time, it’s easy to forget that you might only be passing through and this isn’t actually your destination.
If you are currently submerged in a crisis, you probably think it’s easy for me to say and that I just don’t get your situation. That I don’t know how bad it is. However, can you be so sure? What do you know about me? What’s my story?
Me in my fancy red dream shoes. I’m usually barefoot, especially in Summer.
I’m not in your shoes. That’s a good thing, too. There are times when we need that external tough nut who doesn’t give us what we want but what we need. That tough cop you don’t want to meet when you’ve decided everything’s hopeless and you’ve settled for a living death.
You see, as much as you might think you want someone to come along with a blanket, tucking you in and bringing you meals for however long it takes for you to die in a physical sense, that’s not what you need. Instead, you need that really annoying, irrepressible coach who tells you to: “Move it! Move it! Move it!”
You need action and probably even the proverbial boot up the you know where!
So, my question for you is this: “Do you want to stay where you are or do you want things to change…even if it is only those little annoyances you haven’t followed up?”
What we sometimes forget when we’re intensely focused on what’s gone wrong, is that it can always get worse.Somehow, we manage to shoot ourselves in both feet in addition to whatever adversity has come our way. Sadly, this happens way too often and while it’s tempting to play the blame game, we also have to look to ourselves.
What are we doing to actually improve our lot? To give ourselves the best chance?
You see, we are actually so much stronger than we think and have the means within ourselves to improve our lot. Moreover, as we feel more and more empowered, we in effect shrink whatever beast is bringing us down. Through these victories, however small, we also find a sense of happiness which can help us overcome further setbacks. This is what’s called resilience.
Of course, if you’d told me all of this when I was having a “dooner day”, I would’ve promptly slapped you in the face and retreated even further into my bed. I have to admit my Mum was pretty keen to get me moving again after those many colossal teenage break ups and I really thought she didn’t get it. Didn’t understand me. However, at the same time, when you’re older and you see the long-range, bigger picture, how can you let your beautiful daughter go up in smoke over a stupid boy? How could I do it to myself? That old phrase: “there are always plenty more fish in the sea” might seem heartless but it’s true. You just don’t appreciate that when you’re in it.
“When we are helping someone, it is so important to enable them, NOT render them disabled.”
When we are helping someone, it is so important that we enable them, and do not disable them. While we can gallop in on our white horse and save the day on their behalf and be the hero, wouldn’t it be better to teach them how to ride so they can experience the thrill of not only overcoming their particular adversity, but also gain the strength and pride of learning a new skill? Having a new experience which gives them a sense of victory and achievement rather than reinforcing: “You can’t do this. Let me do it for you.”
Well, this is all very well unless you’ve taken a direct hit. Sometimes you need intensive, ongoing assistance or you might know that someone who does. No amount of wishful thinking, prayer, medical intervention is going to change what’s happened.
Or, is it?
Here I am riding the quad bike. Of all the activities, this one took me most out of my comfort zone.
What I would like to suggest is that you try to find a way around the hurdles and see what is possible. A few years ago, I went away on an Adventure Camp with the Muscular Dystrophy Association. Beforehand, I wasn’t very confident about my physical capabilities and was very wary of trying new things. Of course, given my diagnosis, I had every reason to pull back. However, I knew that the staff knew and understood my limitations. This provided a sort of safety net, which allowed me to take on all sorts of unexpected challenges which took me way beyond my comfort zone. Ironically, probably the most challenging activity was going down a waterslide on the boat without my glasses on. I am so short-sighted that I’m literally blind without them and yet I went flying into the water and pulled myself back onboard. Did I feel weak, powerless and useless after that? NO! Of course, not! Rather, I felt triumphant…even after smacking the water nose first and getting water up my nose. That success propelled me onto further physical successes including riding quad bikes and ultimately skiing down a mountain (an Australian mountain so it wasn’t Everest but it was Everest to me).
These were huge monumental changes for me as I’d never been a physical person and was much more comfortable living inside my head and being the writer.
So, being in the compassion business but also being a survivor, the most compassionate thing I can say to you is… NEVER GIVE UP! I’m not talking about reaching dreams like becoming a millionaire or even one that’s very important to me…getting a book published. What I am talking about is never giving up on YOUR SELF and your ability to pull yourself out of the rabbit hole. This is not to deny the power of prayer and God’s strength but God didn’t make us powerless. He didn’t want us to be victims. He said pick up your mat. NOT… I’ll carry it for you and keep carrying it for you. We are so much stronger than we ever thought possible but we need to use and exercise that strength. Not let it go to waste.
While tough love might seemingly fly in the face of compassion, building strength instead of weakness is an incredible gift of love and what ultimate leads to a more enduring form of happiness.
P.S. The Back Story.
Sometimes I wish I had badges or scars which acknowledge the challenges I have overcome and survived. They would give me the credibility to share my story without people thinking: “What would you know? She’s happily married with two kids. She even has two dogs for heavens sake…and a roof over her head.” You probably wouldn’t even notice any physical proof of my struggles at all.
Yet, if you touched the side of my head, well camouflaged underneath my hair of course, you’d find a bump. That’s the shunt which manages a neurological condition, hydrocephalus. When I was around 25, I had brain surgery and it took a good 12 months just to get back to square one again…let alone fly. The doctor had marked my file with “full recovery” at the time and after six months, those words almost seemed cruel. What was he talking about? I still wasn’t back at work and that’s what a full recovery meant to me at the time. AND…it meant now!! This instant. I was stuck in a dreadful state of suspended animation, which is hard enough for anyone to deal with let alone when you’re young. I picked up photography in a very serious way during this time and looking through the lens, you see what you see and somehow become absorbed into it and out of yourself and your problems. I have no doubt that it helped my recovery. It also bridged that gap with the rest of the world who was working. It turned out that when I went to parties, people were much more interested in hearing about photography than work! I was interesting. Moreover, my stories about the flip-top head were also fairly entertaining.
Throwing humour at your bad luck, also turns things around. Prior to my surgery, I was living in a veritable twilight zone straight out of Oliver Sacks: The Man Who Mistook His Wife for A Hat. Even the horizon moved up and down when I walked, so it’s no surprised that I walked like John Wayne with a broad gait just to keep my balance! This wasn’t the kind of poise you wanted as a young woman or teenager! However, once I was on the mend, these stories were quite funny.
However, as much as we like to believe lightening doesn’t strike the same place twice, it can and it does. Just because it only got your head last time, doesn’t mean that it can’t try and claim the rest of you as well.
Following the birth of my daughter, my immune system went haywire, as it usually does. However, instead of returning to normal, my body started attacking itself when I developed an exceptionally rare auto-immune disease, dermatomyositis. It took 18 months to finally diagnose this beast. By then, most of my muscles had wasted away and I couldn’t dress myself, roll over in bed or put my daughter back in her cot. Ironically, she was still being breastfed and due to the nature of the muscle breakdown, I was still able to look after the kids and get them dressed. Because this thing had snuck up on me and we had no idea what it was, I had no appreciation of just how incredibly hard every single move had become. My feet felt like concrete trying to lift them upstairs and my body felt like a bag of rocks trying to lift myself out of the car yet I just kept going. That’s what you do. It wasn’t like I had a choice. I had two kids to look after so I was also fighting with all that I had, to keep them As soon as I was diagnosed, I was put in a wheelchair. Full stop.
Actually, it could well have been a full stop but it wasn’t. I had treatment and while there is no cure, I am better.
This disease has been a determined blighter and I’ve had several close calls. I live with about 60% lung capacity and had chemo two years ago. I am still here. Not just the shell of who I was, but ME. I am very much alive. Life isn’t perfect. I am content but I am also reflective. I am conscious of my journey and how different things would have been but I’m equally conscious of the depth and wisdom I have gained, which I believe can only be gained through adversity. I also know that I am not the only one. That pretty much everyone has their lot, their burden to carry. So, now the question for me is less about the nature of the load and much more about how I’m going to get to the other side.
Skiing down the mountain at Perisher in August 2013.
How about you? Can you be happy in the midst of adversity?
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